#5,839,656 (+147%) - debracanada.org
Title: DEBRA Canada l Working for a Life Free of Pain
Description: A small group of relatives and friends of EB patients founded DEBRA Canada in 1998. That informal group has evolved into a Board of 10 people who meet monthly to fulfill the association’s goals.
Keywords:EB, Epidermolysis, bullosa, junctionnal, simplex, dystrophic, skin, disorder, rare, blisters, genetic, DEBRA